Let’s Pass the End Kidney Deaths Act in 2024.

The majority of Americans support compensating kidney donors.

“It’s long past time to modify the 1984 National Organ Transplant Act.”

- Al Roth, Nobel Laureate
Pioneer of Paired Donation

For media inquiries, contact Elaineperlman@modifynota.org 

Incentivize organ donation through tax credits

The Coalition to Modify NOTA team proposes the passage of the End Kidney Deaths Act, a ten year pilot program to provide to living kidney donors who give kidneys to strangers, those waiting the longest on the kidney waitlist, a $10,000 refundable tax credit over five years ($50,000 total). By the 10th year after the passage of the End Kidney Deaths Act, up to 100,000 Americans who were dying on the waitlist will instead have healthy kidney transplants, and we taxpayers will have saved up to $37 billion.

90,000 Americans are waiting for a kidney on the transplant waitlist. Less than 50% of them will be transplanted unless we pass the End Kidney Deaths Act.

Help us pass the End Kidney Deaths Act in 2024. Join our team!

The future of organ transplantation is full of possibilities, with high hopes for seeing xenotransplantation and artificial kidneys become a reality, but until that time the End Kidney Deaths Act will provide thousands more lifesaving kidneys.

10,000 die each year who were eligible for transplantation until the waiting time killed them.

Overview:

All non-directed kidney donors will be provided with a $10,000 refundable* tax credit allocated over five years ($50,000 total).

*A refundable tax credit is a credit a taxpayer can get as a refund even if no tax is owed.

Rationale: The current system of organ donation has not been able to adequately address the crisis of kidney failure in the United States. We can remove disincentives for donors so that more individuals become kidney donors, increase the supply of organs and save the lives of far more patients in need.

Cost-Effective Solution:

While there is an initial cost associated with removing disincentives for kidney donors, the long-term benefits far outweigh the expenses. By increasing the number of donor transplants, the need for costly dialysis treatments and other medical interventions can be reduced, resulting in substantial cost savings for the healthcare system in the long run. Medicare currently pays ~100k per year for each End-Stage-Renal-Disease patients.

Ethical Considerations:

The proposal for the removal of disincentives is not intended to exploit individuals but rather to recognize the value of their contribution and to address the current organ shortage. Safeguards are already in place to protect potential and living donors through the thorough physical and mental health screening process. Living donors are assigned a Independent Living Donor Advocate, protecting them from any undue influence or coercion.

The Coalition to Modify NOTA is Led By Non-Directed Kidney Donors

Elaine Perlman

Former Colombia Professor and Executive Director of Waitlist Zero & NKDO mentor

Donated kidney to a stranger in 2020

Ned Brooks

Former Wall Street Executive, the Founder and Chairman of the National Kidney Donation Organization (NKDO)

Donated kidney to a stranger in 2015

Matt Harmody, MD

Retired ER physician, member of HRSA’s Division of Transplantation - Living Donor Steering Committee.

Donated kidney to a stranger in 2017

Cody Maynard

Former health care consultant, Director of Policy for NKDO, and current Strategy Manager for a Value-Based Care company

Donated kidney to a stranger in 2017

Donate

The Coalition to Modify NOTA is Led By Non-Directed Kidney Donors

Elaine Perlman

Former Colombia Professor and Executive Director of Waitlist Zero & NKDO mentor

Donated kidney to a stranger in 2020

Ned Brooks

Former Wall Street Executive, the Founder and Chairman of the National Kidney Donation Organization (NKDO)

Donated kidney to a stranger in 2015

Matt Harmody, MD

Retired ER physician, member of HRSA’s Division of Transplantation - Living Donor Steering Committee.

Donated kidney to a stranger in 2017

Cody Maynard

Former health care consultant, Director of Policy for NKDO, and current Strategy Manager for a Value-Based Care company

Donated kidney to a stranger in 2017

Donate